The transition from being able-bodied to chronically ill and basically partially disabled has been frustrating, even though I have seen it with my mother and grandmother, so I thought I was prepared for it. No I wasn't. I wasn't prepared how every day all my little energy goes into micromanaging everything, just to keep me functioning. I have to:
- be mindful that I have only about 3 hours of energy around mid-day, so if anything needs doing, that has to happen by 1 pm;
- make sure I eat at precise interval, because when I miss it by an hour, I start feeling shaky and sick;
- micromanage what I eat to be the most nutritionally dense thing in the smallest physical quantity so that I don't get shaky and sick, but also don't get gastrointestinal issues;
- spend an hour after every meal obseesively cleaning my teeth and gums, because if I don't my mouth covers in sores and I cant eat for a few days; se above points about shaky and sick; Read More »